Rehabilitation Dataset Directory: Dataset Profile

The Young Children with Physical Disabilities (Seattle, Washington) study is one of three projects in the Communication of People with MR 2006 to 2012 Series, which focuses on identifying participant variables that predict success in increasing communication skills of individual with intellectual disabilities. The data for this study were collected to show that triadic eye gaze for joint attention can be established in very young children with moderate or severe motor impairments. Participants were infants 10-36 months of age with moderate-to-severe motor impairments who are nonverbal and not yet producing intentional communication signals. Participants were convenience sampled from birth-to-three centers in Seattle, Washington

It contains two datasets:

Dataset 1: Functional and Communication Assessments of Individuals with MR (n=48). Includes data on the results of the initial screening for inclusion. Data includes: Complexity of Communication Scale, a Functional Assessment, the Bayley Scales of Infant and Toddler Development, the Mullen Scales of Early Learning and the Communication and Symbolic Behavior Scales. 

Dataset 2 : Triadic Eye Gaze Intervention for Young Children with Physical Disabilities (n=18) participant selection for experimental intervention and control phase was based on criteria collected in Dataset 1 and contains data on Triadic Eye Gaze and Coordinated Joint Attention. The 18 participants, were randomly assigned to one of two groups: The experimental treatment group (n=9) received direct treatment for Triadic Gaze delivered by a research Speech-Language Pathologist in addition to standard practice. The control group (n=9) received standard practice. Children in both groups were observed in a play activity with an examiner approximately every 3 weeks to monitor Triadic Gaze learning. 

Triadic Gaze, Children, Infants, Toddlers, Experimental, Physical disabilities, Motor impairments, Non-verbal, Speech impairment

Department of Health and Human Services (HHS),

National Institutes of Health

Eunice Kennedy Shriver National Institute of Child Health and Human Development

NA

Developmental disabilities, Intellectual disability

Specific measures included:

• Complexity of Communication Scale (measure developed by the Communication of People with MR project)
• Functional Assessment - the Bayley Scales of Infant and Toddler Development
• Mullen Scales of Early Learning and the Communication and Symbolic Behavior Scales. 
  

Communication, Functional assessment, Symbolic Behavior 

Children with moderate or severe motor impairments between 10 and 24 months of age 

• Dataset 1: n=48 children recruited and screened for eligibility -  Functional and Communication Assessments of Individuals with MR
• Dataset 2: n=18 children who met screening criteria participated in experimental control/treatment conditions

Individual

North America

United States

Seattle, Washington state

NA

Children/Youth

• Event/transaction data
• Experimental data
• Observational data 
  

2007 - 2012

Children in both groups were observed in a play activity with an examiner approximately every 3 weeks to monitor Triadic Gaze learning.

Includes the following common scales:

• Communication Complexity Scale
• Bayley Scales of Infant and Toddler Development
• Mullen Scales of Early Learning
• Communication and Symbolic Behavior Scales (CSBS)

• Significant  missingness of data in Dataset 1 for some variables including gender, and functional assessment measures.
• Follow-up timing varies, sample attrition issues.  
• It is not possible to link datasets 1 and 2 (for confidentiality reasons).

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36516 

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36516/datadocumentation 

 Public Use Dataset

 Data Use agreement, No cost (Restricted-use dataset)

Downloadable Codebooks:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36516/datadocumentation 

Individual variables:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36516/variables 

• Dataset 1: Functional and Communication Assessments of Individuals with MR (Eligibility screening)
• Dataset 2: (n=18) Triadic Eye Gaze Intervention 

This study is one of the three projects in the Communication of People with MR, 2006 to 2012 Series. The other two studies in this series are:

• Language Development of Non-verbal Children Age 3 Years through 7 Years, 2007 to 2012 [Kansas City Metro Area] 
• Requests for Assistance with Adaptive Switches from Individuals with Severe Communication Impairments, 2007 to 2012 [California, Kansas, and Washington] 
  

Data-related publications list:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36516/publications 

Data Documentation:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36516/datadocumentation

• National Children’s Study Archive
• National Institute of Child Health and Human Development Data and Specimen Hub