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Rehabilitation Dataset Directory: Repository Profile

Repository: National Institute of Child Health and Human Development Data and Specimen Hub (NICHD DASH)

Basic Information
Repository Full Name National Institute of Child Health and Human Development Data and Specimen Hub
Repository Acronym NICHD DASH
General Theme or Special Population

Children/Youth
Summary

NICHD DASH is a centralized resource for researchers to store and access de-identified data from NICHD-funded research studies for  secondary research use. It is a mechanism for NICHD-funded investigators to share research data from studies in accordance with NIH Data Sharing Policies. Many of the NICHD-funded research studies also collected biospecimens that are stored in the NICHD Contracted Biorepository. To provide access to these biospecimens, NICHD DASH stores and make available to other investigators the biospecimen catalog for studies that have associated research data in NICHD DASH. By supporting data and biospecimen access through NICHD DASH, NICHD aims to accelerate scientific findings and improve human health.
Key Terms

Children/Youth, Child health, Child development, Environmental factors
Sponsoring Agency/Entity

National Institutes of Health (NIH)

National Institute of Child Health and Human Development (NICHD)
Datasets Information
Data Type(s)

Survey, Biomarkers, Environmental exposure measures
Continent(s)

International
Countries

International
Strengths and Limitations
Strengths

Well designed, easy to navigate, and informative repository with clear tutorials regarding use.

No account required to browse or search for study data stored in NICHD DASH; however, an account is required to submit or request study data and download study documentation.

A wide variety of biospecimens collected in a number of the repository studies can be requested.

Interface provides consistent information across studies regarding design and study population (sex, life stage, ethnicity, race, location).
Limitations

Limited to only NICHD-funded research studies.
Data Repository Details
Primary Website

https://dash.nichd.nih.gov/
Repository Tools

DASH Tutorial Provides detailed instructions on all aspects of DASH.


Data Explorer allows filtering by:

  • Topic
  • Study Type
  • Research Networks and Initiatives
  • Subjects by Sex
  • Subjects by Life Stage
  • Subjects by Ethnicity
  • Subjects by Race
  • Subjects by Location

Biospecimen Explorer allows filtering by:

  • Search by Subject ID
  • Search by Sample ID
  • Type
  • Biological Macromolecule
  • Donor Sex
  • Donor Race
  • Donor Ethnicity
  • Preservation Type
  • Use Restrictions Based on Consent

Documentation Explorer allows filtering by:

  • Study Name
  • Topic
  • Study Type
  • Research Networks and Initiatives
Data Submission Requirements

Limited to only NICHD-funded research studies. An account (free registration) is required to  submit study data.
Data Submission Process

https://dash.nichd.nih.gov/resource/submission
Data Access

Free account registration is required to  request study data and download study documentation.
Data Access Requirements

Data Use agreement, No cost
Documentation & Resources
Technical

DASH Tutorial:

https://dash.nichd.nih.gov/resource/tutorial
Other Papers

DASH, the data and specimen hub of the National Institute of Child Health and Human Development

https://www.nature.com/articles/sdata201846

Ask Our Researchers

Have a question about disability data or datasets?
E-mail your question to our researchers at disabilitystatistics@cornell.edu


The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).

Other CLDR supported resources and collaborative opportunities:

Acknowledgements: This tool was developed through the efforts of William Erickson and Arun Karpur, and web designers Jason Criss and Jeff Trondsen at Cornell University. Many thanks to graduate students Kyoung Jo Oh and Yeong Joon Yoon who developed much of the content used in this tool.

For questions or comments please contact disabilitystatistics@cornell.edu



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