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Dataset: Language Development of Non-verbal Children Age 3 Years through 7 Years, 2007 to 2012 [Kansas City Metro Area] ()

Basic Information
Dataset Full Name Language Development of Non-verbal Children Age 3 Years through 7 Years, 2007 to 2012 [Kansas City Metro Area]
Dataset Acronym
Summary

The Language Development of Non-verbal Children Age 3 Years through 7 Years in the Kansas Metro Area is one of the three projects in the Communication of People with MR, 2006 to 2012 Series, focusing on identifying participant variables related to success in improving communication skills of young individuals with intellectual disabilities (see "other related datasets" below). Select preschool-age children with intellectual and developmental disabilities, including those with autism and Downs Syndrome were identified as candidates for augmentative and alternative communication (criteria included 8 specific requirements for participation). Children were recruited through school districts in and near the Kansas City metropolitan area, Kansas. 


The data for this study were collected to determine how acquisition of symbolic communication using Voice Output Communication Aid (VOCA) affects the development of successful communication exchanges. Dataset 1 is limited to a sample of English speaking children. Dataset 2 includes limited baseline assessment measures of a small sample of Spanish speaking children.
Key Terms

Developmental disability, Autism, Children, Speech impairment, Communication, non-verbal, Special education, Preschool age
Study Design Longitudinal
Data Type(s) Administrative
Clinical
Survey
Sponsoring Agency/Entity

Department of Health and Human Services

National Institutes of Health

Eunice Kennedy Shriver National Institute of Child Health and Human Development
Health Conditions/Disability Measures
Health Condition(s)

Down syndrome, Autism spectrum disorders
Disability Measures

Intellectual disability, Developmental disabilities
Measures/Outcomes of Interest
Topics

Communication, Non-verbal communication, Assistive technology (AT), Augmentative or alternative communication (AAC), Voice Output Communication Aid (VOCA), Cognitive development, Comprehension, Play
Sample
Sample Population

Individuals ages 3-5 years with intellectual and developmental disabilities with minimal communication skills. 
Sample Size/Notes

Dataset 1 (English speaking sample):

  • 93 assessed at time 1
  • 82 assessed a year later (time 2)

Dataset 2 (Spanish speaking sample):

  • 19 assessed at time 1
  • 16 assessed a year later (time 2)
Unit of Observation

Individual
Continent(s)

North America
Countries

United States
Geographic Coverage

Kansas City metropolitan area 
Geographic Specificity

NA
Special Population(s)

Children/Youth
Data Collection
Data Collection Mode

Multiple modes:

  • Coded observations
  • Cognitive assessment tests
  • In-person interview
  • Web-based survey
Years Collected

2007 - 2012
Data Collection Frequency

Baseline and 1 year followup
Strengths and Limitations
Strengths

Assessment included the following scales:

  •     Communication Complexity Scale
  •     Mullen Scales of Early Learning
  •     Peabody Picture Vocabulary Test
  •     Preschool Language Scale

English version only:

  •     Design to Learn 
  •     Early Childhood Environment Rating Scale
Limitations

Some time 2 sample attrition

Small Spanish population sample size

Spanish version only collected at baseline and excluded 2 of the 6 scales used in the English version (Design to Learn and Early Childhood Environment Rating Scales).
Data Details
Primary Website

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472 
Data Access

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472/datadocumentation# 
Data Access Requirements

 Public Use Dataset - de-identified (information is edited or masked to protect respondent identity)

 Data Use agreement, No cost (includes most demographics information)
Summary Tables/Reports

Codebook:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472/datadocumentation# 
Data Components
  • Dataset 1 (English speaking sample)
  • Dataset 2 (Spanish speaking sample)
Similar/Related Dataset(s)

Requests for Assistance with Adaptive Switches from Individuals with Severe Communication Impairments, 2007 to 2012 [California, Kansas, and Washington] (ICPSR 36515)


Young Children with Physical Disabilities, 2007 to 2012 [Seattle, Washington] (ICPSR 36516)
Selected Papers
Other Papers

Publications:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472/publications 
Technical

Data Documentation:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472/datadocumentation#
Related Repositories
Repositories

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The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).

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Acknowledgements: This tool was developed through the efforts of William Erickson and Arun Karpur, and web designers Jason Criss and Jeff Trondsen at Cornell University. Many thanks to graduate students Kyoung Jo Oh and Yeong Joon Yoon who developed much of the content used in this tool.

For questions or comments please contact disabilitystatistics@cornell.edu



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