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Tools
Rehabilitation Dataset Directory: Repository Profile
Repository: National Children’s Study Archive (NCS)
| Basic Information | |
|---|---|
| Repository Full Name | National Children’s Study Archive |
| Repository Acronym | NCS |
| General Theme or Special Population | Children/Youth, Child health, Child development, Environmental factors |
| Summary | The National Children’s Study Archive (NCS) Archive is a data and sample repository for the National Children’s Study. It provides access to data and samples collected from over 5,600 U.S. children and their birth families to study environmental influences on child health and development. The study collected information on demographics, medical history, health status and behaviors, physical measurements, child development, psychosocial and cognitive assessments, and environmental exposures. These data include more than 14,000 variables, are available for continued research. Tools for exploring these data are available to registered users. ** NOTE: As of 2020 NCS data has been transferred to the NICHD Data and Specimen Hub (DASH) in 2020. NCS Archive data files will continue to be available to researchers through the DASH data request system: https://dash.nichd.nih.gov/Study/228954 . |
| Key Terms | Children/Youth, Child health, Child development, Environmental factors |
| Sponsoring Agency/Entity | National Institutes of Health (NIH) National Institute of Child Health and Human Development (NICHD) |
Datasets Information |
| Data Type(s) | Clinical, Survey, Biomarkers, Environmental exposure measures |
| Continent(s) | North America |
| Countries | United States |
Strengths and Limitations |
| Strengths | A curated teaching dataset is available for use in undergraduate or graduate studies. Includes a wide range of data collected over time covering a large variety of topics. Data includes:
|
| Limitations | Due to funding issues the NCS study was cut short resulting in a smaller sample than originally planned for, some individual studies have small sample sizes. |
Data Repository Details |
| Primary Website |
As of 2020 NCS data has been moved to the National Institute of Child Health and Human Development Data and Specimen Hub (NICH-DASH) |
| Repository Tools | As of 2020 NCS data has been moved to the National Institute of Child Health and Human Development Data and Specimen Hub. See NICH-DASH description. |
| Data Submission Requirements | NA As of 2020 NCS data has been moved to the National Institute of Child Health and Human Development Data and Specimen Hub (NICH-DASH) |
| Data Submission Process | NOTE: As of 2020 NCS data has been moved to the National Institute of Child Health and Human Development Data and Specimen Hub (NICH-DASH) |
| Data Access | Accessing NCS participant-level data and samples for analysis requires submission of an application and supporting documentation. All requests for data and sample access are reviewed by the NICHD. Researchers with approved projects will be able to analyze NCS data on virtual workstations within a secure Researcher Portal supported by Archive Staff. ** NOTE: As of 2020 NCS data has been transferred to the NICHD Data and Specimen Hub (DASH) in 2020. NCS Archive data files will continue to be available to researchers through the DASH data request system: https://dash.nichd.nih.gov/Study/228954 . |
| Data Access Requirements | Data Use agreement, No cost |
Documentation & Resources |
| Technical | Publicly available documentation: Study Overview: https://www.nichd.nih.gov/research/supported/NCS#data NCS Study description and Guide: Access descriptive documents here: https://dash.nichd.nih.gov/Study/228954 Detailed documentation available to registered users. |
| Other Papers | NCS related publications: |
Ask Our Researchers
Have a question about disability data or datasets?
E-mail your question to our researchers at disabilitystatistics@cornell.edu
The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).
Other CLDR supported resources and collaborative opportunities:
- Archive of Data on Disability to Enable Policy and research (ADDEP)
- Data Sharing & Archiving at CLDR
- Pilot Project Program
- Visiting Scholars Program
Acknowledgements: This tool was developed through the efforts of William Erickson and Arun Karpur, and web designers Jason Criss and Jeff Trondsen at Cornell University. Many thanks to graduate students Kyoung Jo Oh and Yeong Joon Yoon who developed much of the content used in this tool.
For questions or comments please contact disabilitystatistics@cornell.edu