Rehabilitation Dataset Directory: Dataset Profile

The Early Intervention Colorado (EI-CO) Participant Characteristics, Service Use, and Outcomes, Colorado, 2014-2016 data was collected as part of the Individuals with Disabilities Education Act (Part C) statewide early intervention (EI) systems for infants and toddlers with, or at risk for, developmental delays. The purpose of gathering these data was to describe children's diagnostic, social, and functional characteristics associated with access and use of core EI services.  The data are based on administrative information and were created in collaboration with a community partner in a large, urban EI program in Colorado, focusing on the EI population served by the program over approximately a 2 year period.

The database utilized the electronic data collected through the program for  2045 cases. It contains 44 variables; including child characteristics/demographics: race, ethnicity, language, sex, age, and developmental condition type, as well as EI service receipt, and Child Outcomes Summary (COS). In addition, a number of variables were derived that could be of importance to EI stakeholders when conducting clinical queries for quality improvement including EI service use intensity (i.e., hours per month) for all EI services, as well as discipline-specific (e.g., physical or occupational therapy) service use. 

EI service use includes the number of core services (sum of discipline-specific services received), number of EI hours, and duration of EI service (in months) and EI intensity (the number of all EI service hours per month). EI service use was also described by core discipline: Physical Therapy, Occupational Therapy, Speech Therapy, Psychology, or Developmental Intervention. For each core discipline, the researchers estimated 1) "any" discipline-specific service and 2) discipline-specific service intensity. 

Child Outcomes Summary (COS) are included in the data as well. COS is used by most states and measures functional performance for the purposes of EI care plan development and outcomes monitoring. COS scores have the potential to be a marker for discipline-specific EI service need and reflect difficulty with functional domains (e.g., cognition). COS scores  are based on the EI team consensus are are related to 1) having positive social relationships, 2) acquiring and using knowledge and skills, and 3) taking appropriate action to meet needs. Each COS score is on a 7-point scale, from 1=Very Early Skills (i.e., child does not use any immediate foundational skills related to this outcome) to 7=All Skills Expected (i.e., there are no concerns about the child's function in this area). 

Developmental disability, Child health, Early life conditions, Early life interventions, Family services, Infants, Toddlers, outcome evaluations, Physical therapy, Psycho-social assessment, Service providers, Administrative data

National Institutes of Health (NIH),

National Center for Medical Rehabilitation Research (NCMRR)

NA

Developmental disabilities (developmental delay)

Number of significant delays (1,2,3 or more)

Domain of developmental delay: adaptive behavior, cognitive, communication, physical, social emotional

Severity of delay (for each domain)

• No delay,
• Mild/moderate (<25%)
• Significant (25%-32%)
• Significant (33%-50%)
• Significant (>50%)

Early childhood intervention, Early Intervention (EI), Developmental delay, Developmental condition, Developmental Disability (DD), Evaluation, IDEA part C, Intervention services, Service use, Child Outcomes Summary (COS)

Children who were discharged from an urban early intervention (EI) program in Colorado between October 2014 and September 2016.

2,045 children total

• 1,703 of whom had received at least one billable early intervention service.
• COS information was available for 65% (n=1,326/2,045) and 70% (n=1,180) of children who received a core EI service 

Individual

North America

United States (Colorado)

Urban area in Colorado

Zip code

Children/Youth

Electronic administrative records

10/2014 to 9/2016

Relatively large sample (EI program serves about 12% of all EI children in Colorado)

Multiple measures of EI service use including: type, duration and intensity.

Child Outcomes Summary (COS) measurements taken at entry to EI program and at exit from program for the majority of the sample.

Includes entry and exit scores of EI children on the following scales: 

• PSK: Positive Social Emotional Skills
• AUK: Acquiring and Using Knowledge and Skills
• TAAM: Taking Appropriate Action to Meet Needs

Sample is limited to a single urban area and one EI program.

Not all children had complete COS measurements (COS scores available for 65% of children in sample)

Multiple functional areas are covered in each COS sub-scale (e.g., the adaptive behavior domain includes mobility items), and COS items specify how a functional task is performed, which may not differentiate it from an age-normed developmental score.

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/37131/summary 

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/37131/summary 

 Data Use agreement, No cost

Codebook (PI)

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/37131/datadocumentation# 

NA

Codebooks and Documentation:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/37131/datadocumentation 

• National Children’s Study Archive
• National Institute of Child Health and Human Development Data and Specimen Hub