Rehabilitation Dataset Directory: Dataset Profile

Child HCAHPS surveys the parent or legal guardian of children aged ≤17 years old to assess their experiences of their hospital inpatient care. The purpose of the Child HCAHPS is to provide parent/guardian feedback that can be used for institutional quality projects and for rating the quality of inpatient facilities.  Child HCAHPS covers most of the topics addressed by the Adult version of the Hospital Survey (Adult HCAHPS) but also includes topics that are particularly relevant to pediatric care. 

Note: Child HCAHPS data is not currently available.

Inpatient, Acute, Hospitalization, Patient-centered outcomes, CMS, Value-based purchasing, Quality of care outcomes, Survey, Pediatric, Child, Youth, Adolescent, Parent, Hospital, Guardian

Department of Health and Human Services (HHS):

Agency for Healthcare Research and Quality (AHRQ): 

Center for Quality Improvement and Patient Safety (CQuIPS)

NA

NA

Parent/Guardian perception of the following (related to their child's hospital stay): Communication with parent, Communication with child, Attention to safety and comfort, Hospital environment, Global rating of hospital.

Random sample of patients 17 years or younger with at least one overnight stay as inpatient who were discharged from a hospital with a non-psychiatric Medicare Severity-Diagnosis Related Group (MS-DRG).

Note: the survey is completed by eligible patients’ parents/guardians

Approximately 4,100 participating hospitals

Goal of at 300 completed surveys per year per hospital.

Sampling Guidelines and Protocols Document: 

http://www.hcahpsonline.org/globalassets/hcahps/quality-assurance/2018_qag_v13.0.pdf

Individual/Patient surveys, aggregated at the hospital level

United States

National

Hospital

Children/Youth

Four Methods:

• Mail Only
• Telephone Only
• Email with Mail or Telephone
• Mixed Mode

2014 - present

Quarterly

• Comparable data collected across most US hospitals
• Multiple modes available for survey completion increases response rates
• Patient-centered outcome measures
• Strong incentive for hospital participation due to value-based purchasing 
• Vendors must be CMS approved to conduct the survey, increasing quality

• Child HCAHPS data is not currently available
• Surveys are aggregated by hospital, patient-level data not available
• No clinical correlation of patient reports
• Designed for acute-care hospitals only, majority of specialty hospitals are excluded. 
• Does not assess child’s perceived experience separate from the parent/guardian

https://www.ahrq.gov/cahps/surveys-guidance/hospital/about/child_hp_survey.html

NOTE: Child HCHAPS data is not currently available

Public Use Dataset

National averages:

http://www.hcahpsonline.org/en/summary-analyses/

• Patient Survey (HCAHPS)- Hospital
• Patient Survey (HCAHPS)- National
• Patient Survey (HCAHPS)- State
• Patient Survey (PCH-HCAHPS)- PPS exempt Cancer Hospital- Hospital
• Patient Survey (PCH-HCAHPS)- PPS exempt Cancer Hospital- National
• Patient Survey (PCH-HCAHPS)- PPS exempt Cancer Hospital- State

Consumer Assessment of Healthcare Providers and Systems (CAHPS) - Adult Hospital Survey

Variation in Family Experience of Pediatric Inpatient Care As Measured by Child HCAHPS

Sara L. Toomey, Marc N. Elliott, Alan M. Zaslavsky, David J. Klein, Sifon Ndon, Shannon Hardy, Melody Wu, Mark A. Schuster

Pediatrics, Apr 2017, 139 (4)

http://pediatrics.aappublications.org/content/early/2017/03/20/peds.2016-3372

Validation of New Quality Measures for Transitions Between Sites of Care

Layla Parast, Q. Burkhart, Arti D. Desai, Tamara D. Simon, Carolyn Allshouse, Maria T. Britto, JoAnna K. Leyenaar, Courtney A. Gidengil, Sara L. Toomey, Marc N.Elliott, Eric C. Schneider, Rita Mangione-Smith

Pediatrics, Apr 2017

http://pediatrics.aappublications.org/content/early/2017/04/12/peds.2016-4178

The Development of a Pediatric Inpatient Experience of Care Measure: Child HCAHPS®

Sara L. Toomey, Alan M. Zaslavsky, Marc N. Elliott, Patricia M. Gallagher, Floyd J.Fowler, David J. Klein, Shanna Shulman, Jessica Ratner, Caitriona McGovern, Jessica L. LeBlanc, Mark A. Schuster

Pediatrics, Jul 2015

http://pediatrics.aappublications.org/content/early/2015/07/15/peds.2015-0966

http://www.hcahpsonline.org/en/technical-specifications/ 

• National Children’s Study Archive
• National Institute of Child Health and Human Development Data and Specimen Hub