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Rehabilitation Dataset Directory: Dataset Profile

Dataset: Functional Independence in Children at a Pediatric Clinic in Guanajuato, Mexico, 2004-2013 ()

Basic Information
Dataset Full Name Functional Independence in Children at a Pediatric Clinic in Guanajuato, Mexico, 2004-2013
Dataset Acronym
Summary

This study sought to evaluate the functional independence in children at a Centers for Pediatric Rehabilitation Teleton (CRIT) facility in Guanajuato, Mexico through the use of the Functional Independence Measure Instrument (WeeFIM) for children (0-3 Module). WeeFIM is an easily administered scale for assessing independence across 3 domains based on a conceptual framework by the World Health Organization of pathology, impairment, disability and handicap, and the “burden of care.” The objective of the study is to compare the characteristics of children who use assistive technology (AT) specifically: wheelchairs, walkers, prosthetics and orthotics, with children who do not use AT.


The dataset was generated from electronic health records in May 2013  for secondary analysis of de-identified data. The goal of CRIT was to improve social integration for children with disabilities in Mexico through comprehensive rehabilitation services, including physical therapy, occupational therapy, neurotherapy, speech therapy, physical and rehabilitation medicine, psychology, social integration, and school for parents. Researchers also sought to determine what factors were related to the functional independence of children with disabilities.
Key Terms

Assisted Living, Assistive Devices, Children, Cognition, Functional independence  Physical Disabilities, Program Evaluation, Rehabilitation Programs
Study Design Cross-Sectional
Data Type(s) Administrative
Clinical
Sponsoring Agency/Entity

The Benter Foundation
Health Conditions/Disability Measures
Health Condition(s)

Masked by ICPSR
Disability Measures

WeeFIM is an 18-item, 7-level ordinal scale instrument that measures a child’s consistent performance in essential daily functional skills. Three main domains (self-care, mobility, and cognition) are assessed by interviewing or by observing a child’s performance of a task to criterion standards.

The WeeFIM instrument utilizes a 7-level ordinal scale:

  1.  = Total Assistance (Child performs >25% of tasks)
  2.  = Maximal Assistance (25-49%)
  3.  = Moderate Assistance (50-74%)
  4.  = Minimal Assistance (Less than 75%)
  5.  = Supervision/Setup
  6. = Modified Independence
  7. = Complete Independence
Measures/Outcomes of Interest
Topics

Assistive devices, Outpatient Rehabilitation services, Social engagement and mental health, Effects of socioeconomic disparities on health, Functional Independence
Sample
Sample Population

Cross-sectional, convenience sample of patients at a pediatric rehabilitation facility in Guanajuato, Mexico.
Sample Size/Notes

n=2,651
Unit of Observation

Individual/Patient
Continent(s)

Central America & Caribbean
Countries

Mexico
Geographic Coverage

Guanajuato, Mexico
Geographic Specificity

NA
Special Population(s)

Children/Youth
Data Collection
Data Collection Mode

Record Abstracts
Years Collected

2013
Data Collection Frequency

WeeFIM evaluations occurred 1-3 times  (median age of 3.10 at first evaluation and 5.68 years old at final evaluation) 
Strengths and Limitations
Strengths
  • Based on administrative and clinical records
  • Standardized functional outcome measure 
  • Up to 3 measures of WeeFIM function scale over time
Limitations
  • Minimal documentation 
  • Limited number of variables
  • Many variables of interest are masked
  • WeeFIM domain level data not available
  • Convenience sample, limiting generalizability and introducing selection bias risk. 
Data Details
Primary Website

https://doi.org/10.3886/ICPSR37068.v1 
Data Access

https://doi.org/10.3886/ICPSR37068.v1  
Data Access Requirements

Access to the data is restricted. Users must complete a Restricted Data Use Agreement, specify the reasons for the request, and obtain IRB approval or notice of exemption for their research.
Summary Tables/Reports

https://www.icpsr.umich.edu/web/ADDEP/studies/37068/versions/V1/variables
Data Components

NA
Selected Papers
Other Papers

Evaluation of Factors That Impact Functional Independence in Children at a Pediatric Clinic in Mexico

https://onlinelibrary.wiley.com/doi/10.1016/j.pmrj.2014.08.057 


ICPSR publication links:

https://doi.org/10.3886/ICPSR37068.v1
Technical

Documentation:

https://www.icpsr.umich.edu/web/ADDEP/studies/37068/versions/V1/datadocumentation 
Related Repositories
Repositories

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The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).

Other CLDR supported resources and collaborative opportunities:

Acknowledgements: This tool was developed through the efforts of William Erickson and Arun Karpur, and web designers Jason Criss and Jeff Trondsen at Cornell University. Many thanks to graduate students Kyoung Jo Oh and Yeong Joon Yoon who developed much of the content used in this tool.

For questions or comments please contact disabilitystatistics@cornell.edu



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