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Rehabilitation Dataset Directory: Dataset Profile

Dataset: Minimum Data Set (MDS: v.3.0)

Basic Information
Dataset Full Name Minimum Data Set
Dataset Acronym MDS: v.3.0
Summary The Long Term Care MDS is a standardized screening and clinical assessment tool of the health and functional status of all residents (regardless of payer types) in skilled nursing facilities (long-term care facilities) certified by Medicare and Medicaid. The MDS 3.0 was implemented in October 2010 replacing the MDS 2.0 version. The MDS measures the health status of residents in the following domains: Hearing, Speech, and Vision; Cognitive Patterns; Mood; Behavior; Preferences for Customary Routine and Activities; Functional Status (including Activities of Daily Living); Bladder and Bowel; Medical Diagnosis; Health Conditions; Skin Conditions; Medications; Special Treatment and Procedures; Participation in Assessment and Goal Settings; and Therapy Supplement for Prospective Payment System.
Key Terms Outcomes in the following areas: Hearing, Speech, and Vision; Cognitive Patterns; Mood; Behavior; Preferences for Customary Routine and Activities; Functional Status (including Activities of Daily Living); Bladder and Bowel; Medical Diagnosis; Health Conditions; Skin Conditions; Medications; Special Treatment and Procedures; Participation in Assessment and Goal Settings; and Therapy Supplement for Prospective Payment System.
Study Design Longitudinal
Data Type(s) Administrative
Sponsoring Agency/Entity

Department of Health and Human Services (HHS):

Centers for Medicare and Medicaid Services (CMS)
Health Conditions/Disability Measures
Health Condition(s)

Alzheimer's/dementia, Anxiety disorders, Arthritis, Autism spectrum disorders, Bipolar disorder, Blood disorder, Body mass index (BMI)/obesity, Cancer, Cardiovascular conditions, Cerebral palsy, Chronic pain, Depression, Diabetes, Down syndrome, Epilepsy or seizure disorder, Eye diseases,  ICD-9/10 diagnostic codes, Infectious diseases, Kidney/renal condition, Missing limbs/hand/finger/feet, Multiple sclerosis,Orthopedic conditions, Osteoporosis, Parkinson's disease, Partial or total paralysis, Post traumatic stress disorder (PTSD), Pulmonary disorders, Schizophrenia, Stroke, Thyroid disease, Traumatic brain injury (TBI)
Disability Measures Ambulatory disability, Cognitive disability, Communication impairment, Developmental disabilities, Functional limitations (ADLs and/or IADLs), Hearing disability, Intellectual disability, Mental health disability, Self-care disability, Special equipment use/assistive technology, Visual disability
Measures/Outcomes of Interest
Topics Hearing, Speech, and Vision; Cognitive patterns; Mood; Behavior; Preferences for customary routine and activities; Functional status (including Activities of Daily Living); Bladder and bowel; Medical diagnosis; Health conditions; Skin conditions; Medications; Special treatment and procedures; Participation in assessment and goal settings; Therapy supplement for prospective payment system.
Sample
Sample Population Residents of Medicare and Medicaid certified Skilled Nursing Facilities
Sample Size/Notes ~2,500,000 (±) Medicare patients qualified to receive post-acute care at nursing facilities
Unit of Observation Patient
Continent(s) North America
Countries
Geographic Coverage National
Geographic Specificity Zip Code
Data Collection
Data Collection Mode Administrative
Years Collected 1999-present
Data Collection Frequency Annual
Strengths and Limitations
Strengths Large sample size, longitudinal functional status data. Can be linked with claims and/or other CMS non-CMS data. Includes quality indicators. Adequate and appropriate documentation is available regarding use of data/variables.
Limitations No rehabilitation intervention details. Lacks other clinical information/observation details.
Data Details
Primary Website https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/NursingHomeQualityInits/
Data Access https://www.cms.gov/Research-Statistics-Data-and-Systems/Files-for-Order/LimitedDataSets/index.html
Data Access Requirements Data Use agreement, $ Cost
Summary Tables/Reports NA
Data Components NA
Selected Papers
Other Papers NA
Technical

https://www.resdac.org/cms-data/files/mds-3.0/data-documentation

https://downloads.cms.gov/files/MDS-30-RAI-Manual-V114-October-2016.pdf
Related Repositories
Repositories

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The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).

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Acknowledgements: This tool was developed through the efforts of William Erickson and Arun Karpur, and web designers Jason Criss and Jeff Trondsen at Cornell University. Many thanks to graduate students Kyoung Jo Oh and Yeong Joon Yoon who developed much of the content used in this tool.

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