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Rehabilitation Dataset Directory: Dataset Profile

Dataset: National Home Health and Hospice Care Survey (NHHCS)

Basic Information
Dataset Full Name National Home Health and Hospice Care Survey
Dataset Acronym NHHCS
Summary The NHHCS is a survey of a national sample of home health care agencies and hospice care agencies. All agencies selected to participate in the survey were certified by Medicare and/or Medicaid or individual states at the time of the survey. Home health agencies that provide only personal assistance services or durable medical equipment are not part of the survey. The survey uses Computer-Assisted Personal Interviews (CAPI) for data collection regarding services the agencies provide and staffing levels. The survey also gathers data (through home health and hospice agencies) on demographic characteristics of patients who receive services. The 2007 version of the survey included a supplemental survey of home health aides employed by home health and/or hospice agencies (National Home Health Aide Survey - NHHAS).
Key Terms Agency Characteristics, Medications (provided to patients), Patient Characteristics
Study Design Longitudinal
Data Type(s) Survey
Sponsoring Agency/Entity Centers for Disease Control and Prevention (CDC): National Center for Health Statistics (NCHS): Division of Health Care Statistics - Long-term Care Statistics Branch
Health Conditions/Disability Measures
Health Condition(s)

Cardiovascular conditions, Diabetes, Depression, ICD-9/10 diagnostic codes (primary diagnosis & up to 15 secondary diagnoses), Pressure ulcers, Pulmonary disorders

Disability Measures

Ambulatory disability, Cognitive disability, Functional limitations (ADLs and/or IADLs), Special equipment use/assistive technology, Personal assistance needs

Measures/Outcomes of Interest

Agency Characteristics: Ownership, Size, Referral sources, Accreditation, Contracts with other agencies, Staff competencies [educational, cultural etc.], Employee training, Staffing diversity, Medical, Rehabilitative services, Personal assistance provision, Advance directives, Agency administration and management [education, competency, work experience], Employment history [past three months], Compensation levels, Non-medical services [transportation etc.], Teaching status [health professionals], Medications (provided to patients): number, drug type.

Patient Characteristics: (Note: No direct interviews with patients, patient variables collected through agency). Socio-demographic variables, Length of stay, Source of payment, Living situation, Medical diagnosis, Caregiver availability, Secondary complications [pressure ulcers etc.], Functional status, Activities of Daily Living assistance, Durable medical equipment use, Types of services, Intensity of services [number of visits]

Sample Population Home health care agencies and Hospice care agencies
Sample Size/Notes
  • Agency (2007): 1,036 agencies
  • Home Health Care: 4,683 patients
  • Hospice: 4,733 patients
Unit of Observation Agency & Patient
Continent(s) North America

United States

Geographic Coverage National
Geographic Specificity Metropolitan Statistical Area (MSA)
Data Collection
Data Collection Mode Survey (CAPI)
Years Collected 1992, 1993, 1994, 1996, 1998, 2000, and 2007
Data Collection Frequency Variable
Strengths and Limitations
Strengths Data collected at three levels: agency, medication, and patient levels. Adequate and appropriate documentation available (including data files, questionnaire, and data dictionaries). Researchers can determine intensity of services (rehabilitative services) provided to patients at home and hospice settings. Comprehensive information available related to agency and patient level characteristics.
Limitations Most recent data available from 2007, Data collection is inconsistent over time (seven year gap from 2000-2007) so longitudinal utility of data is questionable. Relatively small sample size.
Data Details
Primary Website
Data Access
Data Access Requirements Data Use agreement, No cost
Summary Tables/Reports Data Highlights - Selected Tables and Charts & Reports:
Data Components Agency Medication Patient files
Selected Papers
Other Papers
Technical Survey Methodology & Documentation:

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The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).

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Acknowledgements: This tool was developed through the efforts of William Erickson and Arun Karpur, and web designers Jason Criss and Jeff Trondsen at Cornell University. Many thanks to graduate students Kyoung Jo Oh and Yeong Joon Yoon who developed much of the content used in this tool.

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