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Rehabilitation Dataset Directory: Dataset Profile

Dataset: The National Survey of Children's Health (NSCH)

Basic Information
Dataset full name: The National Survey of Children's Health
Dataset acronym NSCH
Summary The NSCH provides nationally representative information for children in ages from 0 -17 for all fifty states in the U.S., including District of Columbia and the U.S. Virgin Islands. Besides providing information on prevalence of chronic conditions and special healthcare needs, this survey provides information on access to medical homes, parental health, family interactions, as well as neighborhood factors impacting children's health. Trends can be compared across the waves of data collected. Note that for 2016-2017 and beyond, the NSCH incorporates the content of the the National Survey of Children with Special Health Care Needs (NS-CSHCN). For more information about the NS-CSHCN, see: http://www.childhealthdata.org/learn/NS-CSHCN
Key Terms Children, Child(ren) with Special Health Care Needs, State level
Study Design Longitudinal
Data Type(s) Survey
Sponsoring Agency/Entity Department of Health and Human Services (HHS) Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB)
Health conditions/Disability measures
Health condition(s)
Disability Measures Ambulatory disability, Cognitive disability, Communication impairment, Developmental disabilities, Functional limitations (ADLs and/or IADLs), Hearing disability, Independent living disability, Intellectual disability, Mental health disability, Self-care disability, Special equipment use/assistive technology, Visual disability
Measures/outcomes of interest
Topics Prevalence of Special Health Care Needs and Chronic Conditions among children in each of the fifty states, including District of Columbia and the U.S. Virgin Islands, Health insurance coverage, Healthcare access and utilization, Access to medical homes and usual source of care, Early, middle and late childhood screening for chronic conditions, Family functioning and socio-economic status including parental health and health behaviors, Neighborhood resources for healthy living
Sample
Sample Population Children ages 0-17
Sample Size/Notes 98,019 child-level interviews conducted during 2011-2012; with a minimum of 1,800 interviews conducted for EACH state, the District of Columbia, and the U.S. Virgin Islands.
Unit of Observation Individual
Geographic Coverage National
Geographic specificity State
Data Collection
Data Collection Mode Survey
Years Collected 2003, 2007, 2011-2012, 2016-2017
Data Collection Frequency Prior to 2016-2017: Every 4 years 2016-2017 and beyond: Annual
Strengths and limitations
Strengths Large sample size - adequate to perform state level analysis. Wide variety of health and disability measures including activity and functional limitations and participation restrictions as well as medical conditions and impairments. Comparisons can be made between the 3 waves of surveys. Information available on neighborhood factors as well as parental and family functioning impacting children's health and well-being. Well documented measures and data.
Limitations A number of the survey’s questions were revised or reordered, and some of the indicators have been re-defined, so some of the indicators cannot be compared between survey waves. More information about survey revisions is available at: <a href=" http://childhealthdata.org/learn/NSCH/resources/survey-revisions "> http://childhealthdata.org/learn/NSCH/resources/survey-revisions </a>
Data details
Primary Website http://childhealthdata.org/learn/NSCH
Data Access Public Use dataset (original SAS version): https://www.cdc.gov/nchs/slaits/nsch.htm Data Use agreement (SPSS, SAS, and STATA with formats and labels): http://childhealthdata.org/help/dataset
Data Access Requirements Public Use Dataset (original SAS version) Data Use agreement, No cost Data Use agreement, $ cost (fee may apply to certain for-profit organizations)
Summary Tables/reports Browse Data: http://childhealthdata.org/learn/NSCH/data Data Briefs and Reports: http://childhealthdata.org/action/databriefs Chartbooks: http://childhealthdata.org/action/chartbooks
Selected papers
Technical http://childhealthdata.org/action/publications
Other Papers Blumberg SJ, Foster EB, Frasier AM, et al. Design and operation of the National Survey of Children’s Health, 2007. National Center for Health Statistics. Vital Health Stat 1(55). 2012. http://www.cdc.gov/nchs/data/series/sr_01/sr01_055.pdf

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