|Dataset Full Name||National Long-Term Care Survey|
The NLTCS is a detailed longitudinal survey that permits observation of changes in the health and functional status of adults ages 65 years and older. The survey also tracks health care expenditures, Medicare services use, and the availability of formal and informal caregiver services. Older adults without impairment living in communities and those residing in institutions are represented in the sample. The survey divides the sample into three cohorts as individuals without disabilities, individuals with disabilities living in the community, and individuals with disabilities living at institutions.
Data can be linked with Medicare files such as the Carrier Claims Record, Clinical Labs, Denominator File, Durable Medical Equipment, Home Health Agency, Hospice, Inpatient, Outpatient, Skilled Nursing Facility, and Vital Statistics File. The NLTCS concluded in 2004.
|Key Terms||Aging, Activities of Daily Living, Assistive Devices, Caregivers (paid and unpaid), Cognitive Functioning, Disability, Disability Trends, Instrumental Activities of Daily Living, Medicare and Medicaid, Institutions|
National Institutes of Health (NIH)
National Institute on Aging (NIA)
|Health Conditions/Disability Measures|
Arthritis, Body mass index (BMI)/obesity, Cancer, Cardiovascular conditions, Cerebral palsy, Depression, Diabetes, Epilepsy or seizure disorder, Eye diseases, Heart attack, Migraine or frequent headaches, Missing limbs/hand/finger/feet, Multiple sclerosis, Orthopedic conditions, Parkinson's disease, Partial or total paralysis, Pulmonary disorders, Stroke
|Disability Measures||Ambulatory disability, Cognitive disability, Communication impairment, Functional limitations (ADLs and/or IADLs), Hearing disability, Independent living disability, Intellectual disability, Mental health disability, Self-care disability, Special equipment use/assistive technology, Veteran service-related disability, Visual disability||Measures/Outcomes of Interest|
|Topics||Aging, Activities of Daily Living, Assistive devices, Caregivers (paid and unpaid), Cognitive functioning, Disability, Disability trends, Instrumental Activities of Daily Living, Medicare and Medicaid, Institutions||Sample|
|Sample Population||Older adults (ages 65 and older) drawn from Medicare enrollment files|
|Sample Size/Notes||The original sample had 35,789 individuals. Subsequent additions of 5,000 individuals every five years replaced individuals lost to follow-up attrition. In 1982, n = 20,485; in 2004, n = 20,474.|
|Unit of Observation||Individual|
|Geographic specificity||Regions: Northeast, Midwest, South, West|
|Data Collection Mode||Survey|
|Years Collected||1982, 1984, 1989, 1994, 1999, 2004|
|Data Collection Frequency||Waves (every five years until 2004)||Strengths and Limitations|
|Strengths||Longitudinal data with a high relevance to rehabilitation research. Data can be linked with Medicare Standard Analytical Files (SAF), including the Carrier Claims Record, Clinical Labs, Denominator File, Durable Medical Equipment, Home Health Agency, Hospice, Inpatient, Outpatient, Skilled Nursing Facility, and Vital Statistics File. These linkages provide medical expenditure information. Adequate documentation is available.|
|Limitations||Most recent data available from 2004.||Data Details|
|Data Access Requirements||Data Use agreement, No cost|
|Data Components||Ancillary Data: Next-of-Kin, Caregiver, Institutional Follow-Up, Venipuncture, and Buccal||Selected papers|
Source and accuracy:http://www.nltcs.aas.duke.edu/doc_source.htm
Other Documentation: http://www.nltcs.aas.duke.edu/doc_other.htm
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The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).
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