Rehabilitation Dataset Directory: Dataset Profile

The Language Development of Non-verbal Children Age 3 Years through 7 Years in the Kansas Metro Area is one of the three projects in the Communication of People with MR, 2006 to 2012 Series, focusing on identifying participant variables related to success in improving communication skills of young individuals with intellectual disabilities (see "other related datasets" below). Select preschool-age children with intellectual and developmental disabilities, including those with autism and Downs Syndrome were identified as candidates for augmentative and alternative communication (criteria included 8 specific requirements for participation). Children were recruited through school districts in and near the Kansas City metropolitan area, Kansas. 

The data for this study were collected to determine how acquisition of symbolic communication using Voice Output Communication Aid (VOCA) affects the development of successful communication exchanges. Dataset 1 is limited to a sample of English speaking children. Dataset 2 includes limited baseline assessment measures of a small sample of Spanish speaking children.

Developmental disability, Autism, Children, Speech impairment, Communication, non-verbal, Special education, Preschool age

Department of Health and Human Services

National Institutes of Health

Eunice Kennedy Shriver National Institute of Child Health and Human Development

Down syndrome, Autism spectrum disorders

Intellectual disability, Developmental disabilities

Communication, Non-verbal communication, Assistive technology (AT), Augmentative or alternative communication (AAC), Voice Output Communication Aid (VOCA), Cognitive development, Comprehension, Play

Individuals ages 3-5 years with intellectual and developmental disabilities with minimal communication skills. 

Dataset 1 (English speaking sample):

• 93 assessed at time 1
• 82 assessed a year later (time 2)

Dataset 2 (Spanish speaking sample):

• 19 assessed at time 1
• 16 assessed a year later (time 2)

Individual

North America

United States

Kansas City metropolitan area 

NA

Children/Youth

Multiple modes:

• Coded observations
• Cognitive assessment tests
• In-person interview
• Web-based survey

2007 - 2012

Baseline and 1 year followup

Assessment included the following scales:

•     Communication Complexity Scale
•     Mullen Scales of Early Learning
•     Peabody Picture Vocabulary Test
•     Preschool Language Scale

English version only:

•     Design to Learn 
•     Early Childhood Environment Rating Scale

Some time 2 sample attrition

Small Spanish population sample size

Spanish version only collected at baseline and excluded 2 of the 6 scales used in the English version (Design to Learn and Early Childhood Environment Rating Scales).

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472 

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472/datadocumentation# 

 Public Use Dataset - de-identified (information is edited or masked to protect respondent identity)

 Data Use agreement, No cost (includes most demographics information)

Codebook:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472/datadocumentation# 

• Dataset 1 (English speaking sample)
• Dataset 2 (Spanish speaking sample)
  

Requests for Assistance with Adaptive Switches from Individuals with Severe Communication Impairments, 2007 to 2012 [California, Kansas, and Washington] (ICPSR 36515)

Young Children with Physical Disabilities, 2007 to 2012 [Seattle, Washington] (ICPSR 36516)

Publications:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472/publications 

Data Documentation:

https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36472/datadocumentation#

• National Children’s Study Archive
• National Institute of Child Health and Human Development Data and Specimen Hub