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Dataset: Consumer Assessment of Healthcare Providers and Systems (CAHPS) - Child Hospital Survey (Child HCAHPS)

Basic Information
Dataset Full Name Consumer Assessment of Healthcare Providers and Systems (CAHPS) - Child Hospital Survey
Dataset Acronym Child HCAHPS
Summary

Child HCAHPS surveys the parent or legal guardian of children aged ≤17 years old to assess their experiences of their hospital inpatient care. The purpose of the Child HCAHPS is to provide parent/guardian feedback that can be used for institutional quality projects and for rating the quality of inpatient facilities.  Child HCAHPS covers most of the topics addressed by the Adult version of the Hospital Survey (Adult HCAHPS) but also includes topics that are particularly relevant to pediatric care. 


Information from HCAHPS is also aggregated for star ratings in Medicare's Hospital Compare database.

Key Terms

Inpatient, Acute, Hospitalization, Patient-centered outcomes, CMS, Value-based purchasing, Quality of care outcomes, Survey, Pediatric, Child, Youth, Adolescent, Parent, Hospital, Guardian

Study Design Cross-Sectional
Data Type(s) Survey
Sponsoring Agency/Entity

Department of Health and Human Services (HHS):

Agency for Healthcare Research and Quality (AHRQ): 

Center for Quality Improvement and Patient Safety (CQuIPS)

Health Conditions/Disability Measures
Health Condition(s)

NA

Disability Measures

NA

Measures/Outcomes of Interest
Topics

Parent/Guardian perception of the following (related to their child's hospital stay): Communication with parent, Communication with child, Attention to safety and comfort, Hospital environment, Global rating of hospital.

Sample
Sample Population

Random sample of patients 17 years or younger with at least one overnight stay as inpatient who were discharged from a hospital with a non-psychiatric Medicare Severity-Diagnosis Related Group (MS-DRG).

Note: the survey is completed by eligible patients’ parents/guardians

Sample Size/Notes

Approximately 4,100 participating hospitals

Goal of at 300 completed surveys per year per hospital.

Sampling Guidelines and Protocols Document: 

http://www.hcahpsonline.org/globalassets/hcahps/quality-assurance/2018_qag_v13.0.pdf

Unit of Observation

Individual/Patient surveys, aggregated at the hospital level

Continent(s) North America
Countries

United States

Geographic Coverage

National

Geographic specificity

Hospital

Special Population(s)

Children/Youth

Data Collection
Data Collection Mode

Four Methods:

  • Mail Only
  • Telephone Only
  • Email with Mail or Telephone
  • Mixed Mode

Years Collected

2014 - present

Data Collection Frequency

Quarterly

Strengths and Limitations
Strengths

  • Comparable data collected across most US hospitals
  • Multiple modes available for survey completion increases response rates
  • Patient-centered outcome measures
  • Strong incentive for hospital participation due to value-based purchasing 
  • Vendors must be CMS approved to conduct the survey, increasing quality

Limitations
  • Surveys are aggregated by hospital, patient-level data not available
  • No clinical correlation of patient reports
  • Designed for acute-care hospitals only, majority of specialty hospitals are excluded. 
  • Does not assess child’s perceived experience separate from the parent/guardian
Data Details
Primary Website

https://www.ahrq.gov/cahps/surveys-guidance/hospital/about/child_hp_survey.html

NOTE: Child HCHAPS data is nested within the adult dataset.


Data Access

https://data.medicare.gov/data/hospital-compare?sort=relevance&tag=patient%20survey%20results

NOTE: Child HCHAPS data is nested within the adult dataset.

Data Access Requirements

Public Use Dataset

Summary Tables/reports

National averages:

http://www.hcahpsonline.org/en/summary-analyses/

NOTE: Child HCHAPS data is nested within the adult dataset.


Data Components
  • Patient Survey (HCAHPS)- Hospital
  • Patient Survey (HCAHPS)- National
  • Patient Survey (HCAHPS)- State
  • Patient Survey (PCH-HCAHPS)- PPS exempt Cancer Hospital- Hospital
  • Patient Survey (PCH-HCAHPS)- PPS exempt Cancer Hospital- National
  • Patient Survey (PCH-HCAHPS)- PPS exempt Cancer Hospital- State

NOTE: Child HCHAPS data is nested within the adult dataset.

Similar/Related Dataset(s)

Consumer Assessment of Healthcare Providers and Systems (CAHPS) - Adult Hospital Survey

Selected papers
Other Papers

Variation in Family Experience of Pediatric Inpatient Care As Measured by Child HCAHPS

Sara L. Toomey, Marc N. Elliott, Alan M. Zaslavsky, David J. Klein, Sifon Ndon, Shannon Hardy, Melody Wu, Mark A. Schuster

Pediatrics, Apr 2017, 139 (4)

http://pediatrics.aappublications.org/content/early/2017/03/20/peds.2016-3372


Validation of New Quality Measures for Transitions Between Sites of Care

Layla Parast, Q. Burkhart, Arti D. Desai, Tamara D. Simon, Carolyn Allshouse, Maria T. Britto, JoAnna K. Leyenaar, Courtney A. Gidengil, Sara L. Toomey, Marc N.Elliott, Eric C. Schneider, Rita Mangione-Smith

Pediatrics, Apr 2017

http://pediatrics.aappublications.org/content/early/2017/04/12/peds.2016-4178


The Development of a Pediatric Inpatient Experience of Care Measure: Child HCAHPS®

Sara L. Toomey, Alan M. Zaslavsky, Marc N. Elliott, Patricia M. Gallagher, Floyd J.Fowler, David J. Klein, Shanna Shulman, Jessica Ratner, Caitriona McGovern, Jessica L. LeBlanc, Mark A. Schuster

Pediatrics, Jul 2015

http://pediatrics.aappublications.org/content/early/2015/07/15/peds.2015-0966

Technical

http://www.hcahpsonline.org/en/technical-specifications/ 


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The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).

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